We are in the middle of working on a podcast for this whole situation and at the time that I am writing this, it is not finished. But knowing us, there is a chance it may be finished and out there but we also may be slow and not have it ready. There literally is no telling with us. Life is just a roller coaster over here.

This blog is going to not go into crazy detail of how everything happened as I explain that fully in the podcast. I also am majorly struggling to tell this right now without being completely rude. To which no one needs to read that, nor does anyone deserve that directed towards themselves. So I am going to give a broad overview and tell you our game plan.

I just recently went to the cardiologist and we decided to do a stress test. Reminder this journey is me trying to get my PCP to have POTS on my chart. She does know Functional Medicine has it diagnosed but she needs other doctors to sign off for it to be in my chart. So that is the journey we have been on. We have been trying to get the PCP side to have my diagnosis down so if the off chance I need the hospital, I can have them also know what is going on.

Well I went to that stress test, almost passed out and the doctor turns to me and says “everything looks fine!” I left that appointment and went out to my truck and just sat there for like 20 minutes before I could drive home. I was so livid that I just didn’t even want to risk anyone with my horrible attitude. So I sat there and vented to myself. I spoke all the harsh thing out in my car to just have a moment for myself. Then I started that truck and got moving. Once home, Jeremy and I had our debrief moment and talked about how it all went.

We have officially come to the conclusion that we will be treating this all on our own. We are no longer relying on anyone except my PCP for my nausea meds. It has been one issue after the other and we aren’t receiving any help. Yes we had lots of help with Functional Medicine but at the same time we regret this choice because of how much it has caused more damage. Yes we will be repairing the damage with new techniques but at the same time, quality of life right now is very low. Like today, the day I am writing this, this is the first time I have been on my own and out of the house since before April. This comes from Jeremy and I making plans to have one day a month for me to go to the coffee shop to work on my own. To which Jeremy was also supposed to get one day a week, if not a few hours a day a few days a week. So neither of those options have actually worked and we are at the point of being really big home bodies. I hate it. I absolutely hate not being able to be myself. I hate not being able to move around and function on my own. Especially as that is my way to really calm down. I come back a different person with time to myself. Others take time with friends. I need time to be alone and to just do whatever I want, without feeling horrible and without anyone needing me. (So not gonna lie, this blog time is glorious.) But we went from all these plans to not being able to do them at all! We aren’t going to let that continue.

Jeremy and I plan to try a few different things to bring back into the mix. We sadly have to once again spend some money to make this all work but we are at the point of trying whatever may work. I think we both are about to break with how much I can’t function. Its not fair to either of us and we both miss the Mandy I once was. Don’t get us wrong, we know I have to change but y’all, I have changed so much in the last 2 years, its to the point that I can not think of anything else to change or I will be a couch potato. I refuse that!!!

A few things we want to do is compression socks, compression boot therapy (I don’t remember the proper terms), hydration through natural ingredients, red light therapy midday, possibly creatine, and as always, continuing to keep the diet clean. I honestly want to spend some time this week/weekend really researching and figuring out what else we may need to do. But another thing that I have been slacking, is “school.” I need to get back to my courses so I can actually put them to use and also help my body like it needs.

Essentially we are about to play a fun game of “throw out what hasn’t been working and lets try these things.” We are so tired watching how things continue to change but at the same time, I think we would be fine to have to change up tactics if we actually had some working for us. It’s going to be another bumpy road ahead but we aren’t going to give up. There’s so much more we can try!!